Rare Disease Day, a non-profit awareness day launched by EURORDIS and the Council of National Alliances, is on Feb. 28 every year. Rare diseases such mesothelioma aren’t as public and well-known as many other serious diseases, yet mesothelioma and other asbestos-related diseases are just as life-threatening. As a result, groups and charities from all across the world come together to help spread awareness of diseases that don’t get as much publicity as they should. If you or a loved one suffer from mesothelioma, or if you’d like to help spread awareness, there are a number of things you can do to get involved in the United States.
How Rare Disease Day Helps Mesothelioma Patients
The goal of Rare Disease Day is to educate the public and promote awareness regarding around 6,000 uncommon diseases, including mesothelioma. Even though a multitude of people are diagnosed with mesothelioma each year, it still remains a relatively new disease in the medical world, and many still haven’t heard of the disease. Those that have heard about asbestos harm and how it leads to illness may not fully comprehend just how dangerous mesothelioma can be, and loved ones may be lost as to how they can help.
Additionally, although asbestos has been linked to life-threatening illnesses for more than 30 years, the dangerous mineral is still not completely banned in the U.S. The American Cancer Society (ACS) states that there is no safe level of asbestos exposure, yet people still risk exposure to this very day. It’s important spread awareness regarding the dangers of asbestos and help others protect themselves as much possible.
Rare Disease Day hopes to help people understand the diseases that aren’t given as much attention as other illnesses, by setting goals that include:
- Letting the voices of those with mesothelioma and their loved ones be heard across the world
- Increasing media exposure
- Raising funds for research
- Encouraging schools to get involved and education students on mesothelioma and other rare diseases
- Encouraging the public to reach out to their local officials
How to Get Involved in the U.S.
The easiest way to get involved in Rare Disease Day in your area is to search for local events on the Rare Disease Day’s official site. Numerous events are already planned, including online “tweet chats,” fundraising jogs, government marches, and much more. Simply click on your state to get started.
If you’re unable to attend any of the events, there are a number of other activities you can to do help raise mesothelioma awareness, including:
- Participating in the “Hands Across America” project
- Host your own local event at a convenient, public location
- Write to local news stations and/or elected officials
- Create mesothelioma aware displays for local schools and libraries
Past Success on Rare Disease Day USA
According to the Rare Disease Day official sponsor, NORD, participation in the United States events began in 2009. In 2014 alone, more than 200 photos were submitted to the “Hands Across America” project, over 95 events were held across the nation, and media campaigns reached around 268 million people.
In 2013, President Obama sent a letter to the rare disease community, over 50 researchers were added to the Rare Disease Day hall of fame, and major network stations reached millions of people.
Each year, turnouts for the events helped Rare Disease Day gain more supporters, partners, and ambassadors.
If you or a loved one suffer from mesothelioma, in addition to spreading awareness, it’s important to note that you may qualify for substantial compensation. Currently, there is over $30 billion in asbestos trust funds, awaiting those who’ve been diagnosed with an asbestos illness. We’ve been helping families such as yous get in touch with experienced mesothelioma attorneys for over 20 years. Fill out our contact form today to get free brochures from the leading mesothelioma attorneys in your area.